World Rare Disease Day 2015 : Living with a Rare Disease - Day-by-day, hand-in-hand

World Rare Disease Day 2015

World Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

The 8th annual World Rare Disease Day will be held on Saturday, February 28, 2015. On this day, various activities are taking place all over the world

THEME

The Rare Disease Day 2015 : Living with a Rare Disease - Day-by-day, hand-in-hand

The Rare Disease Day 2015 theme Living with a Rare Disease pays tribute to the patients, families and caregivers who are impacted by rare diseases. The slogan Day-by-day, hand-in-hand evokes the solidarity between families, patient organisations and communities. 28 February 2015 marks the eighth Rare Disease Day .

The complex nature of most rare diseases, coupled with limited access to treatment and services, mean that family members are often the primary source of solidarity, support and care for people with rare diseases. Patient organisations can provide information, experience, resources and support for people Living with a Rare Disease.

Day-by-day, hand-in-hand, patients, families and organisations are joining forces to find common solutions, advocating for treatments, care, resources and services in solidarity with all stakeholders - caregivers, healthcare professionals, specialised social services, researchers, pharmaceutical companies, policy makers, and regulatory bodies.

For Rare Disease Day 2015 let's raise awareness for the daily challenges of Living with a Rare Disease.

First Rare Disease Day was held in 2008.

This Rare Disease Day, raise and join hands for people Living with a rare disease. Day-by-day, hand-in-hand we can make a difference!